|I'm writing a book & need your help please. I want your stories, personal lows & highs as a Patient, carer (prof & unpaid), friend or family member.|
Have you ever wondered what it's like to receive a diagnosis of cancer?
Or had things you wanted to ask the patient but weren't sure if it was ok to ask?
Maybe you you felt useless or uncomfortable around them, wanted to do something to help but didn't know where to start...
What do you want to know?
Whatever it is, please share your feelings and questions here.
The book I'm writing is to support people like you!
Thank you. 💞
Being told one has cancer,
Is really just the start,
As terror in the mind of others,
And fear you could soon depart,
Puts pressure on the patient,
To appear stronger than they are.
~ Soaring Skylark
Have you had chemotherapy?
What about chemo fog?
(Otherwise known as brain fog)
Unable to focus or multitask?
Struggle finding the right word?
Then the answer is probably yes.
It's often thought that once we have completed our chemotherapy regime and our hair has grown back, that we return to our old selves. This is very rarely the case.
Most people experience chemo fog / brain fog for the duration of the chemotherapy . For me that was six months. For others it might last years. But chemo fog can also last a great deal longer than the treatment itself. Some patients will be gin to feel more like themselves after...
It's eight years since the seed for this book was planted. I had begun my gruelling treatment for breast cancer and been struck with an unbelievable amount of poor luck. What began as a diagnosis of breast cancer, soon spiralled out of control as other chronic health issues like blood clots a stroke and arthritis joined in to flatten me. I was not completely defeated but it did make me depressed, extremely lonely and isolated for a long, long time.
But anyone who knows me well agree when I say I'm not one of those people who take it lying down. I am very able researcher and a problem solver!
With so much time on my hands I started gathering ideas to counter the proble...